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Saturday
April 21:
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Arrival Day |
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Sunday
Symposium at Ronald
Reagan International Trade Center |
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Sunday
April 22:
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Science
& Advocacy Symposium - The Atrium Ballroom, RRITC |
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8:30
- 9:15 am: |
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Registration
& Continental Breakfast |
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9:15 - 9:30 am: |
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Welcome Remarks |
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9:30
- 11:00 am: |
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State of the
Emerging Therapies - Regenerative and Restorative |
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Dr. Juanita J. Anders, PhD, Professor, Uniformed Services
University
"Light Therapy - A Non-Invasive
Emerging Therapy for Treatment of Spinal Cord Injury" |
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Dr. Stephen Davies, PhD, Associate Professor, University of Colorado,
Denver
"New Spinal Cord Cells
and Molecules for SCI Repair" |
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Dr. W. Dalton Dietrich III, PhD, Scientific Director, The Miami Project to Cure
Paralysis
"Translating SCI Research
into Practice: New Findings" |
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Dr. John
McDonald, Director of International Center for
Spinal Cord Injury,
Kennedy Krieger Institute & Johns
Hopkins University
“Changing Concepts in
CNS Repair: From Stem Cell to Activity-Based Restoration
Therapies”
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11:00 - 11:30 am: |
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Break
- refreshments |
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11:30
am - 12:30 pm: |
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Roundtable
Discussion -
Paralysis Cures and Treatments; Actions needed from the patient
population to advance |
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12:30 pm - 1:45
pm: |
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Lunch |
|
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Keynote Address
by Dr. Wise Young |
|
|
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"Bases
of Hope, Evolution of SCI Research, China's Clinical Trial Network" |
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2:00 - 2:45 pm: |
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North
American Clinical Trial Network |
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Joseph Canose,
Christopher & Dana Reeve Foundation |
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2:45 - 3:30 pm: |
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Presentations
from the Biotech & Pharmaceutical Industries |
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Dr. Frank Bobe, Chief Business Officer, Boston Life Sciences
"Phase I/IIa Clinical
Trial Results of Cethrin for Acute Spinal Cord Injury" |
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Dr. Donald R. Johns, MD, Novartis Institutes for Biomedical
Research
"Converting Nogo to Go:
Nogo-A Antibody for Spinal Cord Injury" |
|
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Dr. Edward Wirth III, MD, PhD, Associate Medical Director, Geron
Corporation
"Human Embryonic Stem
Cell-Derived Oligodendrocyte Progenitors for the Treatment of Spinal
Cord Injury:
Translation from Preclinical Studies to Clinical Trials" |
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3:30 - 4:00 pm: |
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Break
- Refreshments |
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4:00 - 5:00 pm: |
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Roundtable
Discussion - Clinical
Trials: recruitment and role/obligation of trial participants;
inclusion/exclusion criteria, dangers of media hype, managing
patient expectations; actions needed to support clinical trials;
guidelines for deciding to participate.
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Evening |
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Dinner
on your own |
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Monday
April 23:
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Washington
Plaza Hotel |
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1:00 - 3:00 pm: |
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Open
House hosted by the International Center for Spinal Cord Injury of Kennedy Krieger Institute |
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3:00 - 3:15
pm:
|
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Break
- Refreshments |
|
3:15 - 3:45 pm:
|
|
Legislative
Briefing - Michael Manganiello & Tricia Brooks |
|
3:45 - 5:00
pm:
|
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Remembrance
of Christopher & Dana Reeve - "Hope in Motion"
Special Performance by ProfessirX |
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Evening |
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Dinner on
your own |
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Tuesday
April 24:
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Rally Day |
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11:00 am: |
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Working
2 Walk Rally on Capitol Hill (Upper Senate Park) (map) |
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Hosted by Daryl
"Chill" Mitchell, Movie & TV Actor (see bio)
Sam Schmidt - Sam Schmidt Paralysis Foundation
Danny Heumann - Heumannly Capable
Sabrina Cohen -
Sabrina
Cohen Foundation
Dr. Wise Young -
Rutgers University
Members of Congress
Special Musical Performances by Todd Phillips and ProfessirX |
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12:30-2:00 pm: |
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Lobbyist
Lunch - Box Lunch at the Dirksen Cafeteria |
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As Scheduled: |
|
Legislative Appointments
- Our legislative agenda
is a work in progress and will be determined by what transpires in
Congress between now and April 24.
When calling to make appointments, you may say that you wish
to discuss the following:
The Christopher
& Dana Reeve Paralysis Act (HR 1727)
Stem Cell Research Enhancement Act (S 5)
NIH Funding for cure
research
We will provide
more information as we get closer to the event, and offer a
comprehensive legislative briefing in Washington.
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